Thank you for the info! We are from Virginia, but currently live in Northern Alabama where it seems no one has any answers for us - hence why we are exploring other areas where there are specialists. I'm not sure that surgery would be the right option for our daughter, but I do want to at least talk to some doctors who have a)worked with a situation like ours before and can b) give us some pros and cons and an idea of what to expect if we choose not to do surgery, and if we do. The only option so far presented to us by local doctors has been to put a prosthetic on a one-month old. (Um... no...) Our local doctor recommended we go to Shriners in Greenville, and we are also looking into a hand specialist in Atlanta. But honestly, we are so lost and yes it is premature to even think about surgery on such a little baby... but for my own sanity I need to either plan on doing something for her at some point when she is older or just accept that she is the way she is and will be fabulous regardless!
Can you tell me about what age they recommended you do surgery? What was your recovery period like - did you need to be home a significant amount of time for recovery? If your child was in daycare, did you need to pull him out or have you delayed his entry into that type of thing because of his hand? What types of questions did you ask the doctors?
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