Hello! I have a 2 month old son named Tristan, who was born with Ulnar Aplasia. He is missing the small bone in his forearm, a bone in his elbow, some bones in his wrist, has 2 fingers which are webbed together, and the bone in his forearm is dislocated and not in the elbow socket. We finally saw a hand surgeon yesterday. He said that first he would reset the bone to his elbow so that he has proper movement of his elbow, then he would separate his fingers and move one down to act as a thumb, and later on he would put these pins in the upper bone in his arm to lengthen the bone as his right arm is shorter than his left. He said he won't be able to rotate his forearm side to side, but that his shoulder can move and elbow for the most part. I have been trying to find support groups and any kind of information that will help me on the internet but I haven't found much. I'd like to hear what other people have done for similar problems for their kids. The whole thing has been really hard on myself and my wife as every time I look at him and he smiles back it makes me so sad that such a happy boy has to have such a problem as this. I know there are worse out there but it doesn't exactly make me feel better about it. I just want to make sure that my baby boy gets the best treatment out there and that every option and idea is presented to me. How can I find out all the information I need to know about all these problems he has?
Ulnar Aplasia(2 posts)
It certainly may help to hear about other cases but there are so many different manifestations of ulnar aplasia that you must be careful not to apply one scenario to another. Still the conditions that you describe and what you say the surgeon has said sounds plausible and consistent. Ask a lot of questions and make sure that you feel that each procedure has potential to add function
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