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Shriners Hospitals

(9 posts)
  • Started 6 months ago by Meanders
  • Latest reply from KaylaManship

Total votes:

  1. Meanders
    Member

    Hello,

    I know a lot of people on this message board have used Shriners Hospital. We just consulted with Dr. Kozin in Philadelphia, and we still just can't help but wonder, "What is the catch?" We talked about this with their staff, and we just couldn't believe the service they offer just for the sake of the children!

    Can those of you who chose to have your children operated at Shriners let me know if they felt like the technology was up to par? Also, did you consult with other doctors and how did you reach the decision to go with Shriners over the other hospitals?

    Thank you!

    Posted 6 months ago #
  2. bgarcia1241
    Member

    Hi! We had our first visit with the Shriners Hospital in Minneapolis this past summer and, believe me, we had similar thoughts at first. Especially considering we were given money to help with traveling expenses as well as having our hotel completely taken care of! The Shriners organization is wonderful. Our daughter was born in 2007 with a short right forearm and no right hand. We weren't looking for a surgical consult, but we did receive an abundance of information on the prosthetics the she may utilize in the future. It was quite clear that they knew what they were talking about and had many resources available. We have decided to wait until our daughter gets a little older to pursue any kind of prosthetic, but will gladly return to Shriners when the time comes!

    Posted 6 months ago #
  3. misterboggs
    Member

    We have also used the Shriner's. My daughter has a small palm, partial thumb and 4 nubbins. I found the Shriner's to be a wealth of information and assistance. Our local Shrine Temple provided transportation (the clinic is about 6 hours away) and overnight lodging, no questions asked. Throughout the years we have been invited to all their events: Christmas, circus, picnics etc...

    The closest thing they have to a catch is that it is for children. Depending on the facility, you may age out at 18 and somebody told me one place was 22 if the patient was still in school. Once your child is grown and out on their own, they will no longer be eligible for treatment at their facility.

    My grandfather was a Shriner; these are guys who really, really want to help children. Of course they like to ride on the little cars, motorcycles etc... to help raise awareness and raise money to help children. They found a niche to fill and they do it extraordinarily well.

    I believe (but I could be wrong) that the doctors they select donate their time as well. Sometimes it is difficult to schedule or a long wait to get an appointment to see the doctor because he/she is only at the clinic one day a month or so. (This may vary and they may have changed it since we were last there). The PT, OT and other staff are there much more frequently. Their facilities are phenomenal and the personal service they offer is top notch.

    We have never been for a surgery, but have been for consultations and to work with the PT as we develop a device for playing the violin and gymnastics for my daughter. I would highly recommend the Shriner's to all, without fear and without hesitation.

    Posted 6 months ago #
  4. blueberry
    Member

    They come highly recommended by me as well! They are run by donations only and are well know for how professional they are. If we were choosing surgery, we'd go there.

    Sometimes people just really love kids :)

    Posted 4 months ago #
  5. Tobysmommy1210
    Member

    We were referred to Shriner's in Springfield, MA and the place is amazing! My son saw 2 doctors, got x-rays, and was fitted for his prosthesis all in the same day. I was amazed at what they can do with the prosthesis!

    We returned to Shriner's a month after the first appointment to pick up my son's prosthesis and he had gained a pound since the appointment, so it didn't fit. The guy who made his prosthesis plastered him again and promised his prosthesis would be done that day. 8:00 am he was plastered and by 1:00 we had his amazing looking prosthesis and were on our way home!

    Posted 3 months ago #
  6. NubbinRespect
    Member

    However amazing his prosthesis looks it could never look as amazing or as beautiful as his lovely limb difference, please don't hide the latter with the former.

    Posted 3 months ago #
  7. Tobysmommy1210
    Member

    Since he had the prosthesis made, I've probably put it on him a total of like 5 times. Neither his Dad or I are going to force it on him. It will be completley his decision if he chooses to wear it.

    Posted 3 months ago #
  8. NubbinRespect
    Member

    If it is instilled into him that his lovely limb difference looks...lovely he will not choose to hide it inside an "amazing looking prosthesis" to conform to looking like an able bodied person and if it is instilled into him that being differently abled does not amount to being disabled or disadvantaged he will choose to be differently abled rather than conform to able bodied standards via functioning with a prosthesis.I hope this makes some sense.He won't have been born with disabled pride, it is something he will need to learn from...you.

    Posted 3 months ago #
  9. KaylaManship
    Member

    We have also had wonderful experiences with Shriner's Hospitals. My daughter had syndactly surgery there last summer and she also gets prosthetic legs from them. They do bill your insurance and that helps them cover some cost, but we have never had to make up what insurance does not pay. At first it was in the back of our mind that since it is free, the care may not be up to standard. We could not have been more wrong. We had a great experience with the staff when she had surgery and the prosthetic teams are wonderful. We had a problem with one of the prosthetics and how it fit so the hospital fixed it free of charge. We felt Shriner's was the best choice for us, because they really are the experts when it comes to pediatric limb differences. They see it on a daily basis whereas other places are not as experienced. It's also good for the parents and the children to see other families with similar situations. It's not very common to go to a waiting room and see several other families with prosthetics and limb differences. Every time we go, we meet someone new with an amazing story and that is really encouraging to us.

    Posted 3 months ago #

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