Hi there. I am new here, but often post on other related limb difference web sites. My daughter Kaelyn is 1 and has symbractyldactyl on her left hand (thumb, three nubbins and a small pinky).
My question is that I often see hand/limb differences are a symptom of some other syndrome, and that heart-related issues are often another symptom of the same syndrome.
We have never gotten an official diagnosis. Kaelyn's original doctor thought it was ABS; but I discovered on my own that if it were she wouldn't have nubbins. I found symbractyldactyl on a Web site.
So my question is … do I have kaelyn's heart tested in case it would happen to be one of these syndromes? I forget the names of the two I saw today, but one was like something Holt?
Do I trust that it's just failure to form and that she doesn't have anything else wrong with her?
What are your experiences?