We have a 16 month old daughter who is suffering from Macrodactyly on her right foot affecting her first second and third toes. We are Chinese Malaysian. My husband and I have since visited some doctors and specialists with regard to our daughter's condition however to no avail.
Until recently we were recomended to see a professor in Singapore who is a child orthopeadic surgeon. We have been given 2 options . One being amputation of the largest and longest (second toe) as my daughter's right foot has not only grown longer but wider. Therefore amputation of the second toe is necessary in order for them to reduce the size (width) of her foot. Besides this debulking is also necessary.
The second option is to do debulking and also shortening of the affected bones. Which requires more surgeries in future in comparision to the first option. We are not sure which would be more effective. However, at least we found a doctor who is more aware of this condition as macrodactyly is a very rare condition.
We hope to get the surgery done early next year as we were told that its better to do it earlier and we are not sure if that's true . I hope someone would shed some light and let us know what's the best option available for our daughter. Thank you.