Hi,
My thirteen month son, Daniel, has PFFD in his right leg. His right femur is about a third of his left femur. He just got his first prosthesis and he is doing really well, we are very proud of him. We started a blog a few months ago to keep Daniel's family and friends up to date with his journey - www.danielrigby.blogspot.com
We also started it to share our story with other parents who have children with PFFD. So please feel free to take a look!
Kristen