http://limbdifferences.org/connections/ An online resource for families and friends of children with limb differences. en Thu, 17 May 2012 13:19:26 +0000 http://limbdifferences.org/connections/topic.php?id=1346#post-6298 Thu, 07 Apr 2011 18:46:49 +0000 ninie 6298@http://limbdifferences.org/connections/ <p>Hi everyone. My daughter was born with 2 missing toes on her right foot and that foot is narrower then the other and a bit shorter. i went to see a specialist but he didn't give me the cause nor a name for this.He said she should be able to walk normally she is now 5 months. I am scared and very depressed. 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We saw him yesterday and I find that the days after we see him, I feel angry and sad that my son has this condition at all. Look forward to connecting with others. </p> http://limbdifferences.org/connections/topic.php?id=470#post-2301 Mon, 25 Jul 2005 10:26:23 +0000 KarenO 2301@http://limbdifferences.org/connections/ <p>Unfortunately, our daughter (3) experienced the first mean comment from another child. We were at the pool and Tierney was following two other girls around trying to play with them. They just wanted to play by themselves and at one point turned around and told her to stop following them, then noticed her hand (symbrachydactyly --with a full thumb and 4 nubbins) and started making cruel comments about her fingers. My husband quickly intervened and told our daughter that she didn't want to play with those girls if they were going to be mean. I think it was more upsetting for my husband than daughter. I was out getting a snack for the baby so I didn't see what happened. Nicely, a bit later another girl came over and they played together for quite awhile. I saw the girl looking at Tierney's hand, but never heard her ask about it.</p> <p>Later my daughter told me that some girls had been mean to her and when I asked what they said, she told me that they told her to stop following them. She didn't mention anything about hand comments.</p> <p>Not looking forward to the day when a comment really sticks with her.</p> <p>Karen O. </p> http://limbdifferences.org/connections/topic.php?id=1803#post-7318 Sat, 12 May 2012 05:21:22 +0000 des2verry15@yahoo.com 7318@http://limbdifferences.org/connections/ <p>I would like to ask if you have a clinic here in Dubai and i would like to inquire regarding a prostethic surgery for my right hand pointer finger, how much it would cause and where is your location if possible. </p> http://limbdifferences.org/connections/topic.php?id=1374#post-6376 Sat, 28 May 2011 08:41:16 +0000 mgabella 6376@http://limbdifferences.org/connections/ <p>Hello,<br /> I am 36 weeks pregnant with a baby that has been diagnosed with "apparent symbrachydactyly of the right hand with short right radius and ulna" I was wondering if you could tell me what should I expect from my delivery experience. What happens after the baby is born? do you get to go home on time? or does the baby have to stay longer at the hospital? I am starting to get very anxious about all this and would like to know what to expect, but I have gotten very little information from my OB/GYN or the hospital.</p> <p>Also, how soon after the baby is born will she need therapy?</p> <p>I just have so many questions... if you have answers for any of these I would greatly appreciate it. thank you. </p> http://limbdifferences.org/connections/topic.php?id=1799#post-7123 Tue, 08 May 2012 21:37:55 +0000 aeyeuuo51 7123@http://limbdifferences.org/connections/ <p><a href="http://www.9watches.org/for-sale-lady-rolex-watches-wholesale-producer-rolex-watch-price-hot-sale-p-3584.html">Producer Rolex Watch Price Hot Sale</a> <a href="http://www.9watches.org/exporters-kids-rolex-watches-excellent-cute-rolex-men-s-watches-while-p-3595.html">Exporters Kids Rolex Watches Excellent</a> Don't lead a face to go to, soft track:"Exactly as it should be.Jade frost to you infatuated one, now for the sake of you, again the China college in city is assiduous to persue, you can don't want to be ungrateful to her.Otherwise, I with mother settle Rao not you." 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I've told him since he was little about it. I've always told him never to hide it. I've even showed him pictures of other kids with the same defect. He does everything with it. He plays his video games, etc. He is going through Depression because of the teasing and because of not having his father around to help him through it. Can you please help him understand why this happened to him? I tried, but I don't know how else to explain it. </p> http://limbdifferences.org/connections/topic.php?id=1787#post-7104 Wed, 02 May 2012 08:57:39 +0000 Buckeye 7104@http://limbdifferences.org/connections/ <p>Hello,</p> <p>Our son has four absent digits on one hand and three absent digits on the other. More critically for purposes of this discussion, he also has dislocated elbows bilaterally, and is unable to extend his arms more than 90-degrees of so. This makes self-care quite challenging, particularly in the bathroom.</p> <p>We have installed hooks at home and at school, which he uses to pull his pants up and down. But, they are not foolproof, and are not a long-term answer as he gets older (7 yrs old now) and wishes to visit friends or other places where such hooks are not installed.</p> <p>Does anyone have any ideas or recommendations? We have tried loops in pants, dressing sticks, all with only moderate, if any success. We recognize that there are no easy answers, but are interested in resources that we can explore.</p> <p>Thank you. </p> http://limbdifferences.org/connections/topic.php?id=1784#post-7100 Tue, 01 May 2012 22:02:35 +0000 T Marie 7100@http://limbdifferences.org/connections/ <p>I am currently 21 weeks pregnant and we just found out that our daughter is missing her femur bone. This has been tragic news for us. I am currently in the process of trying to find a specialist that will be able to help us once Brielle is born. </p> http://limbdifferences.org/connections/topic.php?id=1741#post-7038 Fri, 13 Apr 2012 05:02:00 +0000 Debster 7038@http://limbdifferences.org/connections/ <p>Hi, </p> <p>Our 6 year old daughter was diagnosed level 2 bilateral hypoplasia last year. She has had the left hand reconstruction where they tendon transferred from the ring finger last Dec. After 12 weeks cast/splint, I am now about to commence occ therapy to hopefully get this moving better. To tell you the truth I have just cancelld the right hand reconstruction we had scheduled for May. I am just not seeing a huge benefit for her after left hand surgery yet and I really dont want to put her through it all again until I know its worth it for her. As people above say- they adapt. </p> <p>My daughter is right handed- she has adapted with writing and at school. To operate now on her dominant hand and effectively make her sit through a whole school term unable to do anything- I just cant do it to her. Especially considering her self esteem and confidence arent that high to begin with.</p> <p>Once we know whether occ therapy can improve the left hand- then we will consider whether to operate on the right. At the moment- the surgery on the left hasnt won me over that it was worth putting her through that. </p> <p>What Im trying to find out however- does anyone with experience with hypoplasia in thumbs know - has the hypoplasia affected anyone else's schooling or confidence? My daughter does find handwriting exhausting at times, and her confidence and self esteem are really, really low. She seems to be really anxious when attention is on her- and I think that she is kept in at lunch and stuff due to not finishing her work- which isnt helping the self confidence. She is feeling worthless as her writing is not as neat as her friends and she is slower with fine motor tasks - thus she gets upset and frustrated. She has cried a few times and asked me why she doesnt have thumbs live everyone elses or why she has "special thumbs". (it breaks my heart).</p> <p>Anwyay- I am taking her to a child psych next week to hopefulyl seek some support for her and to build her self esteem. She is on the od occasion very upset that her thumbs are "special" and she cant use them like other kids- and I think it really affects her psychologically. Does anyone else notice this in their kids or in those of you who are hypolastic?? Also- if anyone can recommend a good surgeon in Sydney- pls let me know. We saw one at RNSP and I wouldnt mind a second opinion if we do decide to operate on the right hand later. Thanks </p> http://limbdifferences.org/connections/topic.php?id=1786#post-7103 Wed, 02 May 2012 08:57:32 +0000 Buckeye 7103@http://limbdifferences.org/connections/ <p>Hello,</p> <p>Our son has four absent digits on one hand and three absent digits on the other. More critically for purposes of this discussion, he also has dislocated elbows bilaterally, and is unable to extend his arms more than 90-degrees of so. This makes self-care quite challenging, particularly in the bathroom.</p> <p>We have installed hooks at home and at school, which he uses to pull his pants up and down. But, they are not foolproof, and are not a long-term answer as he gets older (7 yrs old now) and wishes to visit friends or other places where such hooks are not installed.</p> <p>Does anyone have any ideas or recommendations? We have tried loops in pants, dressing sticks, all with only moderate, if any success. 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I've lost touch with them and can't find their address and was wondering how their son is doing. If you're out there, I'd love to talk to you again! Any response is appreciated. He's been through 3 surgeries but we're still very nervous and apprehensive as his 4th surgery is next week.</p> <p>Jamie (kylesmom)<br /> Eau Claire, MI </p>