http://limbdifferences.org/connections/ An online resource for families and friends of children with limb differences. en Thu, 17 May 2012 13:19:01 +0000 http://limbdifferences.org/connections/topic.php?id=1346#post-7326 Wed, 16 May 2012 00:04:57 +0000 stephanie123 7326@http://limbdifferences.org/connections/ <p>Hi winona65, i used to wear a shoe lift when i was younger, probably until the age of 12 but then i stopped. I've never worn open toed shoes in front of anyone i feel to embarrassed plus its not something i feel comfortable with people knowing. Now i just wear flats most of the time and i don't use a shoe lifter. </p> http://limbdifferences.org/connections/topic.php?id=1806#post-7324 Tue, 15 May 2012 02:04:45 +0000 afvoqdx87 7324@http://limbdifferences.org/connections/ <p><a href="http://www.cheap-jacket.org/for-cheap-drape-tables-speedy-discount-hiring-of-tables-and-cha-p-2658.html">For Cheap Round Oak Pedestal Table Effective</a> <a href="http://www.cheap-jacket.org/fake-coffee-table-with-chairs-hobo-outlet-light-oak-nest-of-tab-p-2661.html">Outlet Light Oak Nest Of Tables Buy Online</a> Fiercely grasp all of a sudden at hand in.Settle Jing to see.Hold ground in hand.Isunexpectedly smallly coin.She swept one eye.Then Leng.<a href="http://www.cheap-jacket.org/buy-black-wood-console-table-summer-for-cheap-garden-table-for-p-2645.html">Fake Oak Nest Of Tables Sale Hot Designer</a>, The Sou ground of Lin Wan Rong goes toward to seize in her hand.Nu way:"Dare to rob money with iron roosterYou weren't and desperately.Is quick to return money to me!!" 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Het baby born without eyes :( hes so adorable i bet hes going go have strong sences n be smart <a href="http://www.huffingtonpost.com/mobileweb/2012/05/11/mom-video-blind-son-cleft-lip-palate_n_1509939.html" rel="nofollow">http://www.huffingtonpost.com/mobileweb/2012/05/11/mom-video-blind-son-cleft-lip-palate_n_1509939.html</a> </p> http://limbdifferences.org/connections/topic.php?id=1270&page=2#post-7322 Mon, 14 May 2012 17:08:01 +0000 Katie M 7322@http://limbdifferences.org/connections/ <p>Hi tcooper. You sound like you've done well in life. That's great :) </p> <p>May I ask - are you a parent? I think that for my own personal situation, my first reaction was shock, simply because my husband and I had no idea that our son wouldn't have an arm. After 24 hours of labor and delivery, isn't that kind of shocking news, when you're not expecting it? We weren't really sure what it would mean for our son, for his life. We didn't personally know any other congenital amputees, we had nothing to compare the experience to. I've since met many great people, and that has been wonderful. But I had to learn about the condition, etc. I loved my child, but I needed to find out more about what had happened and why. That seems responsible to me...? For our own knowledge, as well as for our son's inevitable questions in the future...?</p> <p>I've learned that as a parent, sometimes getting our minds around things isn't immediate, maybe things aren't the way we envisioned. But for me, acceptance comes eventually. I've also learned that those same things can be wonderful - some of the best experiences we live through. </p> <p>But I'd be lying if I said I'd expected it, you know? I was shocked and needed to learn more about it. Just trying to be honest... </p> http://limbdifferences.org/connections/topic.php?id=470#post-7320 Sat, 12 May 2012 20:23:05 +0000 tcooper 7320@http://limbdifferences.org/connections/ <p>I'm 35 years old and I still to this day love to scare others when someone has the nerve to ask a complete stranger who is trying to enjoy a day at the beach OMG what happen to your leg?? I simply say a shark bit me...with a big smile and walk away. I know being born with a short left femur was a blessing. I love my imperfections.... </p> http://limbdifferences.org/connections/topic.php?id=1270&page=2#post-7319 Sat, 12 May 2012 19:52:10 +0000 tcooper 7319@http://limbdifferences.org/connections/ <p>I have so many mixed emotions reading this forum. Let me start by saying that I am that little baby you mothers have seen through an ultrasound, that baby that you were so excited to meet the day before you were told the "worst" news ever. On Aug 6 1976 at 2:21pm I was born with a short left femur...and after reading this I'm so thankful I was born before they did ultrasounds and before my life was somebody else's choice. I would LOVE to answer any questions I'll take pictures I'll send you old pics what ever would help ya'll.For the first time I cant get the right words out. <a href="mailto:tcooper0118@gmail.com">tcooper0118@gmail.com</a> please email me with any concerns about being born with a limb difference. </p> http://limbdifferences.org/connections/topic.php?id=1803#post-7318 Sat, 12 May 2012 05:21:22 +0000 des2verry15@yahoo.com 7318@http://limbdifferences.org/connections/ <p>I would like to ask if you have a clinic here in Dubai and i would like to inquire regarding a prostethic surgery for my right hand pointer finger, how much it would cause and where is your location if possible. </p> http://limbdifferences.org/connections/topic.php?id=1374#post-7317 Fri, 11 May 2012 00:35:47 +0000 Jazzy222 7317@http://limbdifferences.org/connections/ <p>Hospital are necessary at every place, people get services from them. <a href="http://pakbiz.com/Medicare-Hospital-Karachi_DIR3363.html">Medicare Hospital</a> is also doing same thing karachi with its best efforts. 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She has alreadey gone through some teasing, name calling, staring, whispering, and this is from kids and adults alike (adults are the whisperers generally). She is only 6 1/2 and we have always dealt with it by telling her and others that's the way God made her. I think it has started to sink in because I heard her tell someone new at soccer exactly that the other day. We have allowed her to acknolwedge her differences but not to fall back on her hand like a disability or a crutch - she has to try to do the same things as all the other kids - so she will grow up knowing she can. I am so glad to have found this site today - it sounds like there are lots of people dealing with similar issues and I wish everyone the best in getting through those tought days! </p> http://limbdifferences.org/connections/topic.php?id=1787#post-7113 Fri, 04 May 2012 20:00:45 +0000 OneLuckyLady 7113@http://limbdifferences.org/connections/ <p>Hmmm have you tried asking a physical or occupational therapist ofr advice? They are great with self help techniques. </p> http://limbdifferences.org/connections/topic.php?id=1784#post-7112 Fri, 04 May 2012 19:58:47 +0000 OneLuckyLady 7112@http://limbdifferences.org/connections/ <p>Hi TMarie! My Julia, 5 1/2 was born with a small right hand and has function only in her thumb. Even tought I had routine ultrasounds, we did not know about it until her birth. It was a shock and I know your head is spinning. I promise you, she will amaze you =) I can't say it any better than Katie M. be sure to reach out and find other fmailies. It makes a huge difference. God bless!</p> <p>Melissa </p> http://limbdifferences.org/connections/topic.php?id=1741#post-7110 Thu, 03 May 2012 15:24:05 +0000 Pearl 7110@http://limbdifferences.org/connections/ <p>Oh, I forgot to mention, I have type 4 hypoplasia on my left thumb and type 1 hypoplasia in my left thumb. I've not had surgery on any of my thumbs, but I adapted. </p> http://limbdifferences.org/connections/topic.php?id=1741#post-7109 Thu, 03 May 2012 14:28:33 +0000 Pearl 7109@http://limbdifferences.org/connections/ <p>Hi Debster,</p> <p>I'm not an expert either, so I can't give any advice, but I can share my childhood experiences with you. I grew up with bilateral hypoplasia and I'm 33 years old now. I did face problems in your daughter's age. I had low confidence, and insensitive teachers and curious classmates added to it. I used to find it difficult to write and I used to be a bit clumsy too, but by the time I was 10, I had adapted quite well, and my handwriting had improved so much that even the teachers appreciated it in the report cards. (I still feel some childish pride in saying that. :)) I had also started liking myself for who I was, I started loving my thumbs. I think one of the things which helped was that my parents started taking me to singing classes, and that really boosted my confidence. So I think finding out what your daughter is interested in, and helping her to make that a hobby might help. I also think that being special can hurt when you are very young, but it can also make you strong and determined when you grow older. </p> http://limbdifferences.org/connections/topic.php?id=1784#post-7107 Thu, 03 May 2012 10:17:48 +0000 Katie M 7107@http://limbdifferences.org/connections/ <p>Hi T Marie - I read your post, and although my child was born missing part of his arm, not the exact same issue as you, I do know how hard it is to get our minds around news like this. </p> <p>My son is an adult now (26). He was born back in 1985 when ultrasounds were not done routinely. My husband and I had no knowledge of his missing arm until we were in the delivery room. Quite shocking indeed... I thought the baby was making a fist, but in reality, it was his elbow sticking up. I got pretty emotional, to be honest. At first it was sort of a denial thing - it happened, ok, let's move on. But when it really sunk in, my feelings got pretty deep. The benefit that I had was that I had my baby to hold. I agree with Jeremiah's mom above - once you meet your little girl I think the whole situation will be easier. You can look into her eyes, and touch her... the not knowing, the imagining... that can be very hard.</p> <p>And you are right - you will need to be strong for your daughter. But that's a good parent's job, no matter the circumstances, right? You have a heads-up. You can get informed, figure out ahead of time what might need to happen with your child. Those actions can feel proactive. And you are already here, seeking help, support and information from others. That's awesome, and a benefit I personally didn't have (no internet back then) ;) </p> <p>There are many 'limb difference' organizations popping up - depending on where you live, you could connect with people pre-birth, and they could help you thru any dark days you may experience. Check out "The Lucky Fin Project" They are based out of Michigan, but are linked to families all over the world. They are also on Facebook, which makes for VERY easy connections. </p> <p>As for me and my story, things have turned out very well. My son, Tony, played all sports in which he was interested, (including baseball - yes, with one hand) he marched in the school's band, (trumpet) he dated and is now married (lovely young lady) and is a college graduate (degree in music). He taught himself to play guitar and is working as a singer/songwriter, travelling the US off &#38; on. You can check out his website at tonymemmel.com. He just returned from a 7-week tour ranging from our home state (Wisconsin) to Missouri, TX, TN, GA, the Carolinas, DC, DE, PA, NYC, MA, MI and Chicago, IL. I mention these things not to brag - not at all - but to shed hope and light on a situation. One of my main fears as a young new mom was worrying about negatives - will he date? will he play an instrument? sports? marry? And I like to be able to say that believe me - your child will do whatever they put their mind to! </p> <p>If you ever need to talk on a deeper level, please feel free to e-mail me. My address is <a href="mailto:tmemmel@sbcglobal.net.">tmemmel@sbcglobal.net.</a> I try to get back within a day or two. </p> <p>I wish you and your little family every good thing. God bless!</p> <p>Katie M </p> http://limbdifferences.org/connections/topic.php?id=1784#post-7105 Wed, 02 May 2012 21:46:31 +0000 T Marie 7105@http://limbdifferences.org/connections/ <p>JeremiahsMom,<br /> thankyou so much for your inspiration. Yes it is very hard, however I just keep telling myself I need to be strong for my daughter </p> http://limbdifferences.org/connections/topic.php?id=1787#post-7104 Wed, 02 May 2012 08:57:39 +0000 Buckeye 7104@http://limbdifferences.org/connections/ <p>Hello,</p> <p>Our son has four absent digits on one hand and three absent digits on the other. More critically for purposes of this discussion, he also has dislocated elbows bilaterally, and is unable to extend his arms more than 90-degrees of so. This makes self-care quite challenging, particularly in the bathroom.</p> <p>We have installed hooks at home and at school, which he uses to pull his pants up and down. But, they are not foolproof, and are not a long-term answer as he gets older (7 yrs old now) and wishes to visit friends or other places where such hooks are not installed.</p> <p>Does anyone have any ideas or recommendations? We have tried loops in pants, dressing sticks, all with only moderate, if any success. We recognize that there are no easy answers, but are interested in resources that we can explore.</p> <p>Thank you. </p> http://limbdifferences.org/connections/topic.php?id=1786#post-7103 Wed, 02 May 2012 08:57:32 +0000 Buckeye 7103@http://limbdifferences.org/connections/ <p>Hello,</p> <p>Our son has four absent digits on one hand and three absent digits on the other. More critically for purposes of this discussion, he also has dislocated elbows bilaterally, and is unable to extend his arms more than 90-degrees of so. This makes self-care quite challenging, particularly in the bathroom.</p> <p>We have installed hooks at home and at school, which he uses to pull his pants up and down. But, they are not foolproof, and are not a long-term answer as he gets older (7 yrs old now) and wishes to visit friends or other places where such hooks are not installed.</p> <p>Does anyone have any ideas or recommendations? We have tried loops in pants, dressing sticks, all with only moderate, if any success. We recognize that there are no easy answers, but are interested in resources that we can explore.</p> <p>Thank you. </p> http://limbdifferences.org/connections/topic.php?id=1784#post-7101 Wed, 02 May 2012 00:37:14 +0000 JeremiahsMom 7101@http://limbdifferences.org/connections/ <p>Hi, Let me start by saying I kno exactly how u r feeling at this moment. I have a 7 month old son dat was born wit his left arm shorter than his right, he has 3 fingers on dat hand &#38; missing his thumb on the right hand. I was so hurt when I found out but now dat he is here I wouldnt change him if I could. My baby amazes us everyday &#38; can do everything as if his limbs r normal. He is such a happy baby &#38; I know god has a great plan in store for my son. Keep ur head up &#38; prepare yourself to b the best mother u can to ur child... With time it will all become better, Goodluck &#38; I wish u d best!!! </p> http://limbdifferences.org/connections/topic.php?id=1784#post-7100 Tue, 01 May 2012 22:02:35 +0000 T Marie 7100@http://limbdifferences.org/connections/ <p>I am currently 21 weeks pregnant and we just found out that our daughter is missing her femur bone. This has been tragic news for us. I am currently in the process of trying to find a specialist that will be able to help us once Brielle is born. </p> http://limbdifferences.org/connections/topic.php?id=1346#post-7099 Tue, 01 May 2012 00:01:05 +0000 jmerose87 7099@http://limbdifferences.org/connections/ <p>Hi am jamie i am a 24 year old female i was born with four toes on my right foot and my right foot is and inch smaller then my left one n my right leg is about 2 inches shorter then my left leg i was to get surgery befor i was 16 and neved did because my grama didnt want to see me go thru all that pain that came with it well a year avo i decide to go back to school for cosmetoloy and stated having alot of back pain i went to a ciropracter for two months n nothing was helping so i went to a ortho and ggt a mri from me never getting tbe surgery or wearing a lift i now have degenrating disc disorder so i recomend a shoe lift! For anyone with the same problem! </p> http://limbdifferences.org/connections/topic.php?id=1770#post-7098 Mon, 30 Apr 2012 07:51:19 +0000 farman1422 7098@http://limbdifferences.org/connections/ <p>I definitely enjoyed every little bit of it,</p> <p><a href="http://www.urduwire.com/people/Aiza-Khan_209.aspx">Aiza Khan</a> </p> http://limbdifferences.org/connections/topic.php?id=1098#post-7096 Mon, 30 Apr 2012 00:58:52 +0000 Kyle Rose 7096@http://limbdifferences.org/connections/ <p>Kylesmom this is the kyle rose from oregon that you have lost contact with!! our adress is 27087 old holley rd sweet home oregon. how is kylee doing with his surgerys? </p> http://limbdifferences.org/connections/topic.php?id=1760#post-7091 Fri, 27 Apr 2012 04:54:10 +0000 KarenO 7091@http://limbdifferences.org/connections/ <p>Congrats. That's great news for Tony and Lesleigh. </p> http://limbdifferences.org/connections/topic.php?id=1776#post-7090 Fri, 27 Apr 2012 04:53:12 +0000 KarenO 7090@http://limbdifferences.org/connections/ <p>If you email me I can send you Claude's email. I think he ocassionally checks the site but not often. Several months ago I emailed him about it and he took care of it, but I just don't check the site that often anymore so haven't noticed it. koffringa(at)yahoo(dot)com</p> <p>Karen </p> http://limbdifferences.org/connections/topic.php?id=1760#post-7088 Thu, 26 Apr 2012 20:57:11 +0000 blueberry 7088@http://limbdifferences.org/connections/ <p>Thanks!I'll keep that in mind. And yes, we're doing great. I'm homeschooling Ivy so she really hasn't even confronted a keyboard much yet. Buttons and laces have just kinda worked themselves out, with no imput from me, so I hope a typing is similar. I posted Tony's award winning song to my facebook so all my friends could see it :) </p> http://limbdifferences.org/connections/topic.php?id=1761#post-7087 Thu, 26 Apr 2012 14:54:00 +0000 OneLuckyLady 7087@http://limbdifferences.org/connections/ <p>Hi. My Julia is 5 1/2 and has been getting OT since she was about 14 months. She has never had any delays and has always found a way to do everything that she has set out to do. She first received OT through Early Intervention which is a state based program. You can Google Early Intervention and your state and that should bring to the correct site. Early Intervention sends the therapists to your home to evaluate the child and will continue to come to your home / day care for therapy. Children 'age out' of early intervention at the age of 3. I continued to have Julia's OT work with her since our insurance covered it. She also went to a school that had an OT on staff that worked with her in school and Early Intervention streamlined this process.</p> <p>I remember vividly how hard those first few months were. If you ever have any other questions feel free to e-mail me @ <a href="mailto:lisvarner77@yahoo.com.">lisvarner77@yahoo.com.</a> I'm also on Facebook ( a GREAT resource for hand mommies). I'm under Melissa Harrison Varner. I promise your little girls will AMAZE you =)</p> <p>Melissa </p> http://limbdifferences.org/connections/topic.php?id=1761#post-7086 Thu, 26 Apr 2012 14:52:37 +0000 OneLuckyLady 7086@http://limbdifferences.org/connections/ <p>Hi. My Julia is 5 1/2 and has been getting OT since she was about 14 months. She has never had any delays and has always found a way to do everything that she has set out to do. She first received OT through Early Intervention which is a state based program. You can Google Early Intervention and your state and that should bring to the correct site. Early Intervention sends the therapists to your home to evaluate the child and will continue to come to your home / day care for therapy. Children 'age out' of early intervention at the age of 3. I continued to have Julia's OT work with her since our insurance covered it. She also went to a school that had an OT on staff that worked with her in school and Early Intervention streamlined this process.</p> <p>I remember vividly how hard those first few months were. If you ever have any other questions feel free to e-mail me @ <a href="mailto:lisvarner77@yahoo.com.">lisvarner77@yahoo.com.</a> I'm also on Facebook ( a GREAT resource for hand mommies). I'm under Melissa Harrison Varner. I promise your little girls will AMAZE you =)</p> <p>Melissa </p> http://limbdifferences.org/connections/topic.php?id=1760#post-7084 Wed, 25 Apr 2012 09:56:34 +0000 Katie M 7084@http://limbdifferences.org/connections/ <p>Hi - thank you for your compliment. I'll pass it on to Tony. </p> <p>As for typing, no real magic. He uses a regular keyboard, positions his hand around the middle, learned where all the keys are and just 'goes to town.' haha But seriously, he is a college graduate and has done a LOT of typing in his life, so I think that each child just needs to get a good grip on the letters' positions and just do it. </p> <p>Thanks for asking. Hope all's well? </p> http://limbdifferences.org/connections/topic.php?id=1544#post-7083 Wed, 25 Apr 2012 09:52:51 +0000 Katie M 7083@http://limbdifferences.org/connections/ <p>I really don't know - every so often it becomes full of spam. I hope someone can clear it because I do believe a lot of people have found help here, you know? (Hi by the way - long time, no "see") :) </p> http://limbdifferences.org/connections/topic.php?id=1760#post-7082 Tue, 24 Apr 2012 21:30:03 +0000 blueberry 7082@http://limbdifferences.org/connections/ <p>That's awesome! I'm so happy for you!<br /> hey, I've been wanting to ask you how he learned to type. Any suggestions? </p> http://limbdifferences.org/connections/topic.php?id=1776#post-7081 Tue, 24 Apr 2012 18:58:41 +0000 blueberry 7081@http://limbdifferences.org/connections/ <p>Do you remember who invited you to this site? I can't figure out who is moderating it. It's full of spam. I reallly need to contact whoever is running it. </p> http://limbdifferences.org/connections/topic.php?id=1685#post-7080 Tue, 24 Apr 2012 18:57:31 +0000 blueberry 7080@http://limbdifferences.org/connections/ <p>I don't think we have mods anymore. . . </p> http://limbdifferences.org/connections/topic.php?id=1544#post-7079 Tue, 24 Apr 2012 18:55:49 +0000 blueberry 7079@http://limbdifferences.org/connections/ <p>I can't even tell if we have mods anymore! Do you know who is running this site? </p> http://limbdifferences.org/connections/topic.php?id=1640#post-7078 Tue, 24 Apr 2012 18:53:49 +0000 blueberry 7078@http://limbdifferences.org/connections/ <p>I can't speak from a dr's perspective but I have to say . . . go for it. You wont regret it. You know the old saying "I don't care if it's a boy or a girl, I just want it to be healthy!" That's a lie. No one is healthy! Every child is a risk. And every single one has been 100% worth it. </p>